Quote:
Originally Posted by jinxie1  Over active sympathetic system (adrenaline surges) and/or underactive parasympathetic system may be part of the explanation. It is quite possible that there is a glitch in the autonomic system that is not merely psychosomatic. This would cause an exaggerated response to all forms of stimuli. It's like being hyper vigilant, which leads to chronic exhaustion.
I have a pretty high tolerance for pain, and was diagnosed as having some variant of fibromyalgia by a rheumo, based on pain from trigger points and . Since this DX, I've seen a lot more docs, and submitted to many more tests, and have concluded that I do not have fibromyalgia; rather, I suffer from dysautonomia, which can manifest similarly in some respects.
I wish you and your wife the best. |
Yes this makes a lot of sense so I read this:
NDRF which goes into more detail.
The hyper vigilalence you mention fits really well. That is a much better way of looking at the problem than "over reacting" which many people have mis-intrepreted. IMHO it is often like she is just looking for something to go wrong and cant stand for things to be on an even keel. It is almost like she needs the adrenaline rush of getting upset and angry. I dont mean to imply that this is under conscious control.
She also tends toward sleep apnea and so the REM sleep isnt normal.
What were you refering to by " my highly-fragmented sleep architecture" ?
I disagree with her DR`s Dx based to the lack of trigger points. She certainly does have chronic neck and upper back pain and has had a cervical fusion C456 due to disc degeneration. I think he didnt know what else to call it so settled on FA.
She has another Sx that baffles me: all the Sx of hypoglycenia but not supported in the slightest by the usual daignostic lab tests. Insulin and glucose are well within the normal range both fasting and not. But if she doesnt eat when she is hungry she gets confused, spaced-out, weak and body temp feels haywire. The endo dismissed her without an explanation. AM cortisol normal too, as is thyroid. Is this familiar to you ?
Additionaly, in the summer she is too hot and the winter too cold.
BP runs normal to low normal all the time.
Appreciate your input and if you have any more to say would be very happy to hear it.