Hypopituitarism

[EndoMan]

Looks like it will be more accurate to call my disorder Hypopituitarism caused by ESS, Empty Sella Syndrome.

With Hypopituitarism, i also get to have Hypogonadisum, Hypothyroidism, Hypoadrenalism, and Adult Growth Hormone Deficiency (AGHD).

Mine is Primary Hypopituitarism (directly affecting the pituitary gland), there is Secondary Hypopituitarism (affecting the hypothalamus).

It is a mistake to view this disorder as only Hypogonadisum, unless one is Primary.

There are some great links for Hypopituitarism that show how complex and important all the hormones are for us that have Hypopituitarism.

[pmgamer18]

Mine is do to a bad head injury due to a bad auto accident. I have low T, Thyroid, Cortosol, DHEA, Glucose and IGF-1. Problem for me was for 23 yrs. they told me I was Primary low T and the low normal tests for the above were low but in range. WTF is with Dr.'s now after doing HCG and my T. labs comming back double and my asking why did we just this yr. find out my Pituitary is not working right. I don't think these A-Hole Dr.'s still know how to treat this. I just seen a pituitary Dr. and he wants me to come off all my meds so he can retest me WTF again this is bull shit. More dum ass Endo Bull shit. My Dr. told him no way it could kill me so we are doing the best we can treating this. I am on 5mgs of Cortef 4x's a day. 25mgs of DHEA and 2.5 grains of Armour. For TRT I do shots of 200mgs/ml of Depo T every 3 days .25mls and the 2 days each in between I do 250 IU's of HCG. To keep E2 in check I do .5mgs of Arimidex everyday. Do I feel better it slow going I gained a lot of weight back being house bound for the last yr. but now I am albe to get on the tread mill for 15 min.'s a day. Every winter I get Bronchitis so far not this yr. Last winte it was the worest I don't think I ever got over it until just last week when I switched to Cortef from Isocort.

Last yr. when I switched from gels to shots I was house bound then because of joint and muscle pain. Going on shots and HCG I was out walking and in 3 months started back at the gym working out 3 days a week. I lost over 65 lbs. Things were great until winter came and kicked my ass in the ground. I pray this treating my pituitary gets me back to where I was last yr.

[love_en]

Now you understand what I mean by adequate cortisol being very important for fending off colds and flu. Since starting cortisol replacement, I have not had a cold. Everyone around me is always sick. However, by no means is everything perfect for me yet. I am still in big trouble if it gets over 80 outside. I start the day with a temp of 97.5, but if the weather is warm, I go all the way up to 99.5 or 100. I don't think I am hypopituitary. My TSH is 2.5. I also get that odd tanning associated with high ACTH. Knuckles, elbows and knees lighten up when I am on enough replacement.

[love_en]

Don't you just love endocrinologists. It seems they have forgotten or never learned the symptoms associated with various severities of hormonal deficiencies. As long as you are within reference range everything else does not count. They also love to test, test and test some more. Even though there is no intention of treating you. That is why I gave up expecting a doctor to help me. Their attitude is no better than a dumb assed bastard who never went to medical school.

[Andrew Androgen]

Originally Posted by love_en

Don't you just love endocrinologists. It seems they have forgotten or never learned the symptoms associated with various severities of hormonal deficiencies. As long as you are within reference range everything else does not count. They also love to test, test and test some more. Even though there is no intention of treating you. That is why I gave up expecting a doctor to help me. Their attitude is no better than a dumb assed bastard who never went to medical school.

I totally agree. It seems that endos are like this the world over. What a sorry state of affairs!

[pmgamer18]

Originally Posted by love_en

Now you understand what I mean by adequate cortisol being very important for fending off colds and flu. Since starting cortisol replacement, I have not had a cold. Everyone around me is always sick. However, by no means is everything perfect for me yet. I am still in big trouble if it gets over 80 outside. I start the day with a temp of 97.5, but if the weather is warm, I go all the way up to 99.5 or 100. I don't think I am hypopituitary. My TSH is 2.5. I also get that odd tanning associated with high ACTH. Knuckles, elbows and knees lighten up when I am on enough replacement.

Love_en I did read that some men with a low thyroid end up with high levels of Adrenaline with low temps in the morning and this is making hot. One of are guys went to see Dr. Marianco and he found this put him on Armour. Your THS is on the high side did you ever have your Free T4 and Free T3 checked.

[love_en]

Originally Posted by pmgamer18

Love_en I did read that some men with a low thyroid end up with high levels of Adrenaline with low temps in the morning and this is making hot. One of are guys went to see Dr. Marianco and he found this put him on Armour. Your THS is on the high side did you ever have your Free T4 and Free T3 checked.

I think I am in trouble. Just reread the lab report the endo used to declare me normal. My TSH is 2.79. The reference range goes from 0.28 to 4.0. I will have to test over 4.0 before a doctor here will consider thyroid malfunction. I would say fuck it and get Thyroid-S from out of country. Problem is, the Customs in Hawaii is looking for pills. It is more important for them to take away a sick person's medicine than to find weapons of terror or street drugs. I have a hard time maintaining a supply of prednisolone. I often need to make do with HC cream. 1/2 teaspoon every 4 hours, plus extra if I start to feel shaky or sick. This is not enough if the weather is warm though.

[pmgamer18]

Originally Posted by love_en

I think I am in trouble. Just reread the lab report the endo used to declare me normal. My TSH is 2.79. The reference range goes from 0.28 to 4.0. I will have to test over 4.0 before a doctor here will consider thyroid malfunction. I would say fuck it and get Thyroid-S from out of country. Problem is, the Customs in Hawaii is looking for pills. It is more important for them to take away a sick person's medicine than to find weapons of terror or street drugs. I have a hard time maintaining a supply of prednisolone. I often need to make do with HC cream. 1/2 teaspoon every 4 hours, plus extra if I start to feel shaky or sick. This is not enough if the weather is warm though.

You can prove this to your self by doing your temps and charting them I do this.
http://www.drrind.com/tempgraph.asp#directions
From what I understand a TSH of over 2 can be a problem.
http://www.thyroid-info.com/articles/woliner.htm

[love_en]

Originally Posted by pmgamer18

You can prove this to your self by doing your temps and charting them I do this.
http://www.drrind.com/tempgraph.asp#directions
From what I understand a TSH of over 2 can be a problem.
http://www.thyroid-info.com/articles/woliner.htm

I haven't been able to take my temps at exactly the same time every day, but I see a scary pattern. Can't maintain 98.6. Hot weather put me at or past 99. One more thing. For as long as i can remember, I never perspired. It can be hot, humid, etc and I am doing something, but not a drop of sweat. Everyone else around me has soaked their shirt. I am still dry, but on my way to becoming very sick if I do not stop and get out of the heat.

[pmgamer18]

Originally Posted by love_en

I haven't been able to take my temps at exactly the same time every day, but I see a scary pattern. Can't maintain 98.6. Hot weather put me at or past 99. One more thing. For as long as i can remember, I never perspired. It can be hot, humid, etc and I am doing something, but not a drop of sweat. Everyone else around me has soaked their shirt. I am still dry, but on my way to becoming very sick if I do not stop and get out of the heat.

On and off I have this feeling of being to hot and need to go on side to cool off in the winter I have found that it's my E2 going up that does this. It's dam hard to keep E2 under control If I bring it down to low it kills my wood yet if I let it go up just a little over the Zone I am to hot so much that I can't stand it. I have tried every thing low T levels this caused more problems this it was worth. I have been house bound for the last yr. not getting much exercise and gaining weight. I am hoping when I get my thyroid right I will be able to get some exercise and lose some weight. This did help last yr. when I was doing so good.

[love_en]

This past week I have been experimenting with letrozole or Femara. I took 1/4 of a 2.5mg dose every 3 days. It has not done much for my heat intolerance. But as I am falling asleep at night, I get so hard it is almost painful. As I am waking, same thing. I am enjoying this. Even as a teen, I never got that hard. Something was always wrong in that department. When I was not on TRT, I would have the soft chest and puffy nipples. For heaven's sake, I am a man, not a 10 year old girl. Worse yet, no one noticed. I guess it is acceptable to doctors if their male patients are on the verge of turning into women.

I now worry that all the soy I ate as a child killed my thyroid and testes. My mother was a misguided health nut who thought meat and fats were bad for you. Yeah right, bad if you don't want a chance at being normal. All you men whose mother sat you down every night with a plate piled with roasts, steaks and chops, be thankful. That could be the reason why you went through a normal childhood and adolescence.