wilsons syndrome

[hardasnails1973]

I have been researching ths for past 2 years and still have not found a solution to the problem, my reverse t-3 keeps climbing and my ft3 is in the low range, but if I have low serum t-3 with low ft3 and elevated rt3 then its basically like my thyroid is not even functioning at 20-30% because on my lab test organic acid test it shows that all metabolic by products of fats, proteins, carbs are low across the board. I am on TRT right now but Dr is till puzzled on what to do. The rt3 can not be driven down. We tried armour with cortef and that even bumped them up even further. Right now my rt3 are double the normal range and its causing cellular mayhem because the t3 can not bind to the receptor sites. I have been working at supporting the liver pathways methylation and CBS with proper supplementation and been supporting low serotonin with 5 htp and dopamine with n acetly tyrosine. Rigt now I am just at a standing point where should dr is just thinking of cranking up the t-3 untill ft3 levels comes back in, but will this drive the rt3 down. My main question is how do you lower the rt3 and free up the cellular recepotors so that the t3 can bind too. Could estrogen also be causing an increase in t-3 and since my free cortisol levels are low that estrogen is also binding up the t3 receptors as well. I have 2 other freinds in the same delima and they are stuck as well. Stress I know will cause rt3 to elevate, but mentally and emotionally I am prettyy stable through stress reductbtion and relaxation methods I keep that in check. The only theory I can come up with now is that there may be an underlying infection in the gut that still has not been dealt with that is causing the rt3 to keep elevating or may its just estrogen dominance at its worse because the shbg doubled on last blood test from baseline and drs are still waiting on results from blood tests from 3 weeks ago which is bull shit.. I have read that time relased t-3 was uncessary and that many CFS drs give it 2 times a day because of its half life. So from what I have read by getting my serotnin up through alterantive means may allow more t-3 to be produced and there for stimualte more serotonin in the process.

My theory is if there is hidden estrogen domainance by dealing with this and adrenal fatigue at the same time it could hopefully free up the receptors sites for the thyroid. I did notice on thyroid lab that the TBG was alot higher then the previous test and also something is going on with my homocysteine levels..These started to drop once I added in the TRT increasing the dosages and the lab test were never give while having the creme on but also showed everything in optimal, but applying the creme may have taken them over and I never even know it. until recentily my Shbg DOUBLED from base line. They are way to low but drs do not understand that low homocystein levels are also implicated in many hidden infections, and also estrogen related problems. Everything i look at is pointing striaght to hidden estrogen domaince and possible unresoved infection in the gut (ecoli) which has been there from thje start verified by 2 stool samples test and was never properly treated with in the first place..

[hardasnails1973]

Could even taking phyioslogical dosages of cortef with out proper balancing with dhea or having sub optimal dhea lead to symptoms of high cortisol.

[pmgamer18]

I think if you have an infection this can stop the protein needed to rebuild the cells that take up the RT3 and T3. I can't find much about this but you may get some help reading this link.
http://personal.lig.bellsouth.net/w/u/wurmstei/

[Naturdoc]

As you know, there is a protocol for Wilson's syndrome using t3. Unfortunately it is extremely difficult and many doctors I know who tried it said that it was rarely successful. Have you done an iodine loading test? Supplemental t3 or t4/t3 or iodine may be useful. Are you on other thyroid friendly supplements such as selenium?

[hardasnails1973]

Originally Posted by Naturdoc

As you know, there is a protocol for Wilson's syndrome using t3. Unfortunately it is extremely difficult and many doctors I know who tried it said that it was rarely successful. Have you done an iodine loading test? Supplemental t3 or t4/t3 or iodine may be useful. Are you on other thyroid friendly supplements such as selenium?

I am zinc defieinct and for some reason body is kicking out zinc probably estrogen domaince/ histmiane/ copper imblances which are the main cause because of hidden infection (ecoli) which is causing estrogen to be broken off and recircuated back in the by enzyme they produce which elevated estrogen levels, lower homocysteine, and depeltion of all vital minerals and antioxdeints. Getting a stool sample this week to see what is still down there Ecoli had been indicated on 2 previous samples but drs just totallyignore it like its not important. Mean time the little bastards are overloading my liver with toxins and cause kidney damage (low creatinane on every urine tests). Dr is treating the adrenal fatigue with cortisol (10 mgs, 5,5), but the previous dr was too except the moron stuck me on cortisol and never even checked my other hormones and on a intridcate RBC fatty acid test it should that dhea suppelementation should be investigated but never did. so I am waiting on the rest of test to come back with dhea levels. I think that taking cortisol with unbalanced Dhea levels has been playing havoc on my immune system and also one indicator Lp(a) is 114 when top end range is 75 and drs like to have it other 30. When investigating this I found out raises was estrogen and lack of testosterone, dhea, fish oils, vitamin C (copper toxcity) . Again the drs put me on procotol to reestablish proper fatty acid balance and never checked up on it. Since I had an over load of fish oils in my RBC i stopped fish oils for a year to bleed them out know it needs to reassesst. This is why i am so aggravated they tell you to do something and i do it and they never check ALL the hormones, just bits and pieces and then when some thing comes up abnormal they treat for it but never ddo follow up. The dr I am with now is great but he is very slow and I will not ever goto quest for blood tests again because they take 3 weeks to get the hell back mean while I have to suffer not knowing whats going on. Currenty right now I am being treated for secondary adrenal fatigue becuase of misdiagnoses of simple food born pathogen that put body into total stress mood and started this vicious chanin reaction. He is also treating rt3 with cytomel it self, and we both have suspicion that the cortisol coupled with with out the dhea is causing alot of inuslin, and immuine problems verifieed by low WBC, neutrophils, lycocytes, ect. The cortisol was also driving zinc, vitamin D levels in the ground. Plus the testosterone gel I was taking was converting straight to estrogen and possible dht adding more insult to the problem. Copper toxcity has also been indentified due t o low uric acid levels, hemochromatosis (elevated transferrin saturation levels), hypomethylation. I on TRT with tcreame right now and if after 3 weeks levels do not budge i am going straight o shots beacause of hypo thyroid. adrenal people have skin hydration problems with the creame..

Iodine I use the iodine patch if that is valid enough it stays on about 12 hours and that is it.
I was thinking of doing the iodine piss test with 50 mgs of ioderal. To see. I know iodine does help estrogen metabolism


To correct the problem t
1. identify the bacteria and treat the infection with proper antibiotics
2. Treat adrenal fatigue/ thyroid with cortisol, sea salts, panthetihine, cytomel
3. treat estrogen domaince increasing free testosterone, tesotsterone, lowering the shbg, balancing thyroid/adrenals, calcium d glurate, NO DIM because it could be driving dht levels too low
4. Copper toxcity will correct it self with all 3

Natural dr
What is your opining ion stomach acid, do you think Beta HCL with plant enzyme would be approritate or would one just need plant enzymes and not beta hcl? With adrenal fatigue and thyroid, zinc defieincy one could see how stomach acids would below?
On my urine test for amino acids it was saying hypoclhyrodia but i could not get a GI dr to test for it they said that peoplee functoin on low stomach acid all the time and just made a mockery of me, I should him stool sample test and he just :"told me that they were invalid and never accurate in the first place" I had t done at 2 places and consistency keep showing low bifobacterium and Ecoli.

I read about inosital hexoanacte that was used to reestabish stomach acids. I tried to find a heilzberg capsule machine but there are none around in my area (philadelphia region)

[Naturdoc]

To correct the problem t
1. identify the bacteria and treat the infection with proper antibiotics
2. Treat adrenal fatigue/ thyroid with cortisol, sea salts, panthetihine, cytomel
3. treat estrogen domaince increasing free testosterone, tesotsterone, lowering the shbg, balancing thyroid/adrenals, calcium d glurate, NO DIM because it could be driving dht levels too low
4. Copper toxcity will correct it self with all 3

Natural dr
What is your opining ion stomach acid, do you think Beta HCL with plant enzyme would be approritate or would one just need plant enzymes and not beta hcl? With adrenal fatigue and thyroid, zinc defieincy one could see how stomach acids would below?
On my urine test for amino acids it was saying hypoclhyrodia but i could not get a GI dr to test for it they said that peoplee functoin on low stomach acid all the time and just made a mockery of me, I should him stool sample test and he just :"told me that they were invalid and never accurate in the first place" I had t done at 2 places and consistency keep showing low bifobacterium and Ecoli.

I read about inosital hexoanacte that was used to reestabish stomach acids. I tried to find a heilzberg capsule machine but there are none around in my area (philadelphia region)[/quote]

I am not sure if you are saying ecoli was elevated or low. This should be clear before doing antibiotics, conventional or natural.
DIM should not lower DHT but does promote less active estrogen metabolites and I have seen it balance high estrogen to a lower level over a long time.
If there are no pathogenic bacteria, then you can start probiotics. The type depending on your stool analysis.
The proper HCL level tends to balance stool flora also. Heidelberg instruments are great but hard to find. You can do a trial of betaine hcl. A one grain capsule should have about 630 mg. Start at one capsule and work slowly up to no more than seven with a large meal. Any sign of burning sensation, you have gone too high and should back off one capsule. The inositol hexaniacinate has also worked, Townsend Letter has a good article on this.

[hardasnails1973]

Originally Posted by Naturdoc

To correct the problem t
1. identify the bacteria and treat the infection with proper antibiotics
2. Treat adrenal fatigue/ thyroid with cortisol, sea salts, panthetihine, cytomel
3. treat estrogen domaince increasing free testosterone, tesotsterone, lowering the shbg, balancing thyroid/adrenals, calcium d glurate, NO DIM because it could be driving dht levels too low
4. Copper toxcity will correct it self with all 3

Natural dr
What is your opining ion stomach acid, do you think Beta HCL with plant enzyme would be approritate or would one just need plant enzymes and not beta hcl? With adrenal fatigue and thyroid, zinc defieincy one could see how stomach acids would below?
On my urine test for amino acids it was saying hypoclhyrodia but i could not get a GI dr to test for it they said that peoplee functoin on low stomach acid all the time and just made a mockery of me, I should him stool sample test and he just :"told me that they were invalid and never accurate in the first place" I had t done at 2 places and consistency keep showing low bifobacterium and Ecoli.

I read about inosital hexoanacte that was used to reestabish stomach acids. I tried to find a heilzberg capsule machine but there are none around in my area (philadelphia region)

I am not sure if you are saying ecoli was elevated or low. This should be clear before doing antibiotics, conventional or natural.
DIM should not lower DHT but does promote less active estrogen metabolites and I have seen it balance high estrogen to a lower level over a long time.
If there are no pathogenic bacteria, then you can start probiotics. The type depending on your stool analysis.
The proper HCL level tends to balance stool flora also. Heidelberg instruments are great but hard to find. You can do a trial of betaine hcl. A one grain capsule should have about 630 mg. Start at one capsule and work slowly up to no more than seven with a large meal. Any sign of burning sensation, you have gone too high and should back off one capsule. The inositol hexaniacinate has also worked, Townsend Letter has a good article on this.[/quote]

Yes i am working on the insotiol hexinacinate now because elevated Lp(a) also respond well to niacin so this could kill 2 birds with one stone. I am also going to see if I can order the gastrocaps that they use to test stoamch acids. I tried the the sodium bicarb test and belched after about 5 minutes so I am not producing enough acid to neutrlaize it. So i know stomach acids are really low. I am taking dgeistive enzyem with each meal but they do not seem to be helping at all, Do plant digestive enzyme help even if low stomach acids are apparent. The Bacteria should pathogenic ecoli and all other natural flora was perfect except bifobacterium and I was think FOS might help them adhere to the intestinal wall. I may be repalcing them but they are not adhereing to the intestinal wall and I heard glutemaine possible helps with this..IO think correcting stomach acids will help allervate alot of the digestive problems that for sure

[Naturdoc]

Having the proper amount of stomach acid stimulates stomach emptying and secretion of digestive enzymes by the pancrease.
Specific lactobacillus reuteri is beneficial for pathogenic e.coli.